TY - T1的病人集中研究:一个模型为囊性纤维化(CF)患者参与研究计划JF -欧洲呼吸杂志》乔和J - 10.1183/13993003.国会2019欧元。PA4526六世- 54 - 5 63 SP - PA4526 AU -布鲁克·比安科盟Huziafa Patel盟-艾玛·肖Nunez AU -阿曼达·布伦南盟-苏珊·柯克盟-亚历克斯·霍斯利Y1 - 2019/09/28 UR - //www.qdcxjkg.com/content/54/suppl_63/PA4526.abstract N2 -背景:参与的病人是任何未来的研究成功的核心。詹姆斯·林德联盟优先级设置伙伴关系确定了研究问题的CF患者最直接的相关性。持续的病人和公众(PPI)需要进一步和计划研究患者提供了机会。不断评估测量的影响是必要的。在这里,我们报告PPI在研究计划阶段的应用。目标:1涉及患者在发展中混合方法研究与CF父权男性。2报告PPI的整个生命周期的影响的研究。方法:以下推广主题在一个大型英国成人CF中心,参加患者表示有兴趣参与。PPI的主要原则进行了探讨。由于交叉感染的风险,病人不能直接接触,将PPI纳入CF研究的一个特别的挑战。赠款资金担保还款的病人和时间旅行。Results: Repeated individual meetings have now taken place with three patients. Key principles and features have been co-established: sharing power; including all perspectives; respecting and valuing knowledge; reciprocity; building and maintaining relationships; roles & expectations; personal development; flexibility in plan; and evaluation. A method to incorporate PPI into the study has been jointly developed.Conclusion: PPI positively impacts the research planning phase. Patients have helped develop research that is timely, addresses meaningful questions and that they are willing to take part in. Co-design is possible even when infection control limits patient-patient interactions.FootnotesCite this article as: European Respiratory Journal 2019; 54: Suppl. 63, PA4526.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only). ER -