TY -的T1 -使用在线视觉模拟尺度特发性肺纤维化JF -欧洲呼吸杂志》乔和J - 10.1183/13993003.01531 -2021欧元SP - 2101531 AU -沼泽,Catharina c . AU - Mostard雷米L.M. AU -格拉特案的裁决,Jan c . AU -医学教授保罗盟——WijsenbeekMarlies S. Y1 - 2011/01/01 UR - //www.qdcxjkg.com/content/early/2021/07/21/13993003.01531-2021.abstract N2 -特发性肺纤维化(IPF)是一种进行性的、致命的疾病，对患者[1]的生活有重大影响。症状负担和生活质量(QoL)可以通过患者报告的预后指标(PROMs)进行评估。在过去十年中，越来越多的人提倡使用胎膜早破，以了解治疗和干预措施对患者症状和健康的影响。PROMS通常是冗长的，在纸上，与困难的评分系统，妨碍直接使用在临床实践[2]。因此，在IPF和其他ild中，无论是用于临床试验还是日常实践，都需要易于使用的PROMs。这篇手稿最近已被《欧洲呼吸杂志》接受发表。在由我们的制作团队编辑和排版之前，它在这里以公认的形式出版。在这些制作过程完成后，作者已经批准了结果的证明，这篇文章将转移到最新一期的ERJ在线。请打开或下载PDF以查看本文。利益冲突:C.C. Moor报告了勃林格殷格翰(Boehringer Ingelheim)在提交的作品之外提供的赠款和讲座报酬。Conflict of interest: Rémy Mostard reports personal fees from Boehringer Ingelheim, personal fees from Roche, personal fees from Galapagos, outside the submitted work.Conflict of interest: Jan Grutters and Paul Bresser have nothing to disclose.Conflict of interest: Marlies Wijsenbeek reports grant payments to institution from the Netherlands Organization for Health Research and Development during the conduct of the study; grant, contract payments, consulting fees, lecture payments and advisory board payments to institution from Boehringer Ingelheim, Hoffman la Roche, The Netherlands Organisation for Health Research and Development, The Dutch Lung Foundation, The Dutch Pulmonary Fibrosis Patient Association, The Thorax Foundation, ErasmusMC, Sarcoidosis.nl, Galapagos, Bristol Myers Squibb, Galecto, Respivant, Novartis, Savara; support for attending meetings from Boehringer Ingelheim and Hoffman la Roche; unpaid leadership roles: Secretary of the Idiopathic Interstitial Pneumonia group of the European Respiratory Society, Member of the board of the Netherlands Respiratory Society, Member of the scientific advisory board of the European Idiopathic Pulmonary Fibrosis and related disorders federation, Chair of the educational committee of the European Reference Network for rare Lung Diseases, Advisory board of the Dutch Lungfibrosis and Sarcoidosis patient associations, outside the submitted work. ER -