PT - 日刊文AU - 巴尼亚斯科，安娜玛利亚AU - 芦荟，朱塞佩AU - 卡塔尼亚，赞布罗塔AU - 贾尼尼，Milko AU - 萨索Loredana酒店TI - 巴罗斯卡的发展，在儿科患者患有囊性纤维化AID加强自我管理 - 10.1183 /13993003.congress-2019.PA4522 DP - 2019年09月28 TA - 欧洲呼吸杂志PG - PA4522 VI - 54 IP - 增刊63 4099 - 4100 //www.qdcxjkg.com/content/54/suppl_63/PA4522.short -//www.qdcxjkg.com/content/54/suppl_63/PA4522.full SO - 欧洲呼吸J2019 09月28日;54 AB - 背景：自我管理是在家里根本，以帮助患者提高他们的治疗管理安全，有助于减少再住院和成本。对于患有囊性纤维化（CF），有在营养和酶和维生素摄入量是一个关键问题。Several studies used the Barrows’ Cards method to improve preventive behaviours in patients with chronic health conditions.Aims: This study aims to develop an educational tool, based on the Barrows Cards Method, to improve nutrition self-management and intake of pancreatic enzymes and vitamins at home in child and teenager patient with CF.Methodology: The development process consisted in: 1) literature analysis to identify critical issues in therapeutic education; 2) sharing with a panel of experts of the first two new decks draft; 3) analysis of the validity of the cards (content, face, and pictures); 4) assessment of tool usability. We involved patients and healthcare professionals in CF’s Italian Regional Hospital from March to November 2018.Results: The educational tool consists of two decks, each one consisted of 15 Barrows Cards. One for CF patients aged 7-12 years, the other for CF patients aged 13-18 years. The patients involved (5 children and 7 teenagers) reported that the new cards were easy to understand and use, and no offensive or ambiguous terms were found. Moreover, they proposed to change some medical terms. The contents and pictures were found to be suitable for the specific population.Conclusion: These two new decks of cards represent a handy and easy tool to improve self-management in CF patients. However, more studies are required to generalize its effectiveness.FootnotesCite this article as: European Respiratory Journal 2019; 54: Suppl. 63, PA4522.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).