Ty -jour t1-患者报告的困扰可以帮助特发性肺纤维化中的临床决策：剖面的分析JF-欧洲呼吸杂志1801925 AU -Stewart，Iain au -McKeever，Tricia au -Braybrooke，Rebecca au -Oballa -Oballa，Eunice au -Simpson，Juliet K. Au -Maher -Maher，Toby M. Au -M.Au -Marshall，Marshall，Richard P. Au -Lukey -Lukey，Pauline T. Au-Fahy，William A. au -Jenkins，Gisli au -Saini，Gauri Y1-2019/05/01 Ur -http：//www.qdcxjkg.com/content.com/content/53/5/5/5/1801925.ABSTRACT.ABSTRACT N2 -IDIOPOPARAIC肺纤维化是进行性和致命的间质性肺疾病。我们旨在确定患者对姑息评估调查的反应是否可以预测疾病的进展或死亡。我们在英国的临床临床群体中进行了横断面研究。基于Rasch的方法论从原始45项调查的删节11个项目模型中提供了疾病的遇险价值。将遇险值与肺功能度量进行比较。仅在调查完成后的12个月内预测疾病进展或死亡率，在3、6和12个月中评估死亡的风险。Disease遇险值与肺功能呈负相关（r = -0.275（对于肺的预测散射能力百分比r = -0.275）对于一氧化碳）。从遇险值计算出的预期调查得分可以区分疾病进展（n = 8.8，p = 0.004）和死亡（n = 10.2，p = 0.002）与无疾病进展（n = 6.9）。 Actual survey scores predicted disease progression and death with an area under the curve of 0.60 and 0.64, respectively. Each point increment in actual score increased risk of 12-month mortality by 10%; almost 43% of people scoring above 18 did not survive beyond 105 days.We define a short questionnaire that can score disease distress and predict prognosis, thus assisting clinical decision-making in progressive fibrosis.Responses to a palliative care survey from a clinical cohort of over 240 IPF patients were used to create a concise 11-item distress measure that can help predict disease prognosis with similar reliability to lung function recordings http://ow.ly/QCCt30nMEWU ER -